9 Years…

9 years on this Autism journey. I’m forever changed.

I’ve learned that life isn’t about milestones, accolades or who finishes first. Everyone walks their own path.

I’ve learned people will let you down…continuously. There are many people who just will never “get it”. Autism is a state of being, not an illness to be “cured”.

I’ve learned that the people that continually show up in your life are priceless. Those that continue to invite me, those that want to share in the hard and want to know my son. Those that see the rough days written in my eyes and don’t flinch when I confess the raw details.

I’ve learned that the “perfect” family picture isn’t staged in matching outfits.

I’ve learned compassion and grace are things we should all afford ourselves every now and again.

I’ve learned that people are grossly uncomfortable with different.

I’ve learned to be outspoken when necessary…to continually push the unfiltered questions until someone can answer or admit to me they can’t-then push some more of why they can’t.

I’ve learned speech therapists, feeding specialists, early interventionalists, occupational therapists “get it” more than any other medical professional out there. If you find the right ones, they are priceless and become extensions of your family.

I’ve learned there is no certainty in the future. I’ve learned different is simply just different. I’ve cultivated new dreams.

I’ve learned to be confident in the uncomfortable (kind of…).

I’ve learned that this life isn’t for the faint of heart. Mental fortitude, ingenuity, patience and persistence get us through.

I’ve learned that each new day is a clean slate to begin again.

I’ve learned the power of advocacy.

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